Listen to My Eyesavailable to download from itunes and amazon
Posted on Friday, March 21, 2014
Sophie Louise Spence is a little girl with a dazzling smile and the ability to light up a room. At nine years old she should be attending dance classes, reading books and out playing with her friends.
But these simple childhood pleasures are out of reach for Sophie, because the nine-year-old is one who lives every day with the challenge of the rare genetic condition Rett Syndrome
Initially symptoms can be vague but include speech problems and losing the use of their hands, while some children stop using eye contact and lose interest in toys
The disorder, which strikes as little girls are just beginning to learn how to walk and talk, means that Sophie suffers from severe physical and mental disabilities.
She struggles to communicate and has breathing difficulties and mobility problems – even something as simple as getting to sleep at night proves difficult.
But there is hope. Research into the condition has suggested that damage caused to the brain by the condition is not permanent and could be treated in the future. So, the community in Midlothian in Scotland set about raising funds for Reverse RETT, one of the charities funding the research.
A thousand people came together in a community show and we are now releasing a song from that show, dedicated to Sophie and all the RETT angels. It is performed by local musicians and is called Listen to My Eyes The lyrics say what we think Sophie and all those who have lost the ability to talk and communication would like to say to her loved ones.
I can see you, I can hear you, I just can’t tell you how much I love you.
Now, if you would like to help us find a cure for Sophie and the thousands that suffer from RETT Syndrome them please by the single on iTunes, Google Play, Amazon or one of the other online shops. If you have a few dollars or pounds to spare then please consider donating to our just giving page at http://www.justgiving.com/listentomyeyes or one of the Reverse RETT websites. Thank you so much for listening and best wishes from Scotland.